12.12. ifjor skrev jeg om The Medical Research Council som har et ME-arkiv som er lukket i 73 år (mot normalt 30 år). Jeg har ikke hørt noe mer om dette før i dag, da jeg i min daglige epost med nyheter om ME-relaterte saker, leser at det er oppdaget enda en slik lukket ME-fil, en som omhandler «Medical Policy» om ME/CFS og er lukket i 78 år. Jeg limer inn hele eposten under. Det er igrunn en underlig ting dette her. Hvorfor dette behovet for å lukke filene i så mange år? Hva er det de skjuler egentlig? Eller er det en helt opplagt og naturlig forklaring på dette, i så fall vil jeg gjerne bli opplyst.
Another secret file on ME/CFS comes to light
Margaret Williams 8th October 2010 *
It is notable that two of the funders of the UK PACE Trial on «CFS/ME» (the
MRC and the DWP) have separate secret files on ME/CFS held at the UK
Firstly, the MRC files (Item reference FD 23/4553/1) containing records and
covering the period 1988-1997, which are closed for 73 years (ie.until
And secondly, the DWP files (Piece reference BN 141/1) which have only
recently come to light. and refer to «Medical Policy» on ME/CFS, covering
the period from 1984 to 1993. They are closed for 78 years (ie. until
It is also worth recalling that members of the CMO’s Working Group were
threatened with having to sign the Official Secrets Act and in June 2000
were issued with a warning that even if not covered by the Act, the status
of other documents referring to ME/CFS was «RESTRICTED», a classification
that relates to «sensitive issues» and which, if disclosed, might carry a
severe penalty. The notification further stated: «Papers not so marked are
nevertheless considered confidential….The presumption is that such papers
would in due course be made available to the public…but that the timing
and means of release should be controlled by the authors…or by the
secretariat, as appropriate».
That the Official Secrets Act might have been invoked was confirmed by the
Parliamentary Under Secretary of State at the Department of Health, Lord
Hunt of Kings Heath, in a letter dated 23rd October 2000 and it is notable
that the reasons he gave for protecting information relating to the work of
the CMO’s Working Group on ME/CFS were that it may be: «confidential
information obtained by a Crown servant from a foreign state or
international organisation» and «information in the possession of a Crown
servant the disclosure of which would impede a criminal process».
The question arises, are there any other illnesses where information is
classified for such a long period – the customary period being 30 years, not
78 years? For example, it is known that papers relating to multiple
sclerosis are locked away for only 30 years.
What is so secret about ME/CFS that both the MRC and the DWP feel the need
to lock away documents relating to this illness?
Further information: http://tinyurl.com/32fczyu